Decisions about an individuals care with any illness, injury, disability, condition or disease is often left to families, trusted persons and/or Health Care Providers. There are several challenges with this common approach to care:-
- A family member and/or trusted person may have no experience of the care system or understanding of what the best provision of care may be.
- A family member and/or trusted person is often emotionally challenged due to personal attachment with the individual requiring care.
- A Health Care Provider is part of the care system but has little or no knowledge of the individual requiring care.
- An individual with cognitive impairment trying to make decisions for themselves but finding this challenging.
Entering the care system can be seen as disempowering, having decisions made by others, whether loved ones or trusted persons can negatively impact on an individual's wellbeing and could potentially progress some diseases.